http://www.mybwsbaby.com/feeding-issues daily 0.75 2014-09-22 https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1410414256361-DAX2A5IWSQO4P1QCSV5K/photo+1.JPG Feeding Issues http://www.mybwsbaby.com/feeding-issues/2014/9/14/tips-for-baby-feeding-success monthly 0.5 2014-09-22 https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1410739244696-497QB84WYSYJGNKYCDBW/cracker+crumbs+help+with+feeding+mybwsbaby.com Feeding Issues - Tips for Feeding Baby Solid Foods Playing with graham cracker and cheerio crumbs https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1411402148752-94DUBWGL7NJ32PVQFT5P/Beckwith-Wiedemann+syndrome+messy+food+theory+for+feeding+mybwsbaby.com Feeding Issues - Tips for Feeding Baby Solid Foods Keep calm and play on! https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1410749736702-ZM9M2FC2L40VEWEX2W9E/Feeding+issues-teething+on+carrot+mybwsbaby.com Feeding Issues - Tips for Feeding Baby Solid Foods "What's up doc?" Jacob loves teething on his carrot https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1410738774769-Y7IXEOAZTQ6X1GC9LJ05/teethers+for+feeding+issues Feeding Issues - Tips for Feeding Baby Solid Foods Mesh teethers https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1410738880103-ILTDEWI91T7F3WSLY42U/munchkin+teether+ball+at+mybwsbaby.com Feeding Issues - Tips for Feeding Baby Solid Foods Munchkin teether ball http://www.mybwsbaby.com/feeding-issues/2014/9/11/our-story-with-feeding-issues monthly 0.5 2014-09-15 https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1410414585468-ZN18FEYVK7QD0NHY2KJA/Beckwith+Wiedemann+Syndrome+feeding+tube+NICU+macroglossia+mybwsbab.com Feeding Issues - Our Battle with Feeding Our Newborn Son https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1410414660766-ZFSZJYXEGQMU3CL5SLQI/Beckwith+Wiedemann+Syndrome+NICU+feeding+tube+bili+mybwsbaby.com Feeding Issues - Our Battle with Feeding Our Newborn Son Feeding Jacob under the bili-lights https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1410414720617-KO8UR50IF3PBR68W6R7D/Beckwith+Wiedemann+Syndrome+feeding+tube+NICU+mybwsbaby.com Feeding Issues - Our Battle with Feeding Our Newborn Son My First bottle https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1410749418976-V30U0261SBXVPA4UIVW9/Always+smiling+baby+mybwsbaby.com Feeding Issues - Our Battle with Feeding Our Newborn Son Always smiling https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1410414842954-WZN7F0OGSC7QXFE0RA79/Tommy+Tippee+bottle+Beckwith+Wiedemann+Syndrome+feeding+macroglossia+mybwsbaby.com Feeding Issues - Our Battle with Feeding Our Newborn Son The wide nipple base of the Tommy Tippee bottle http://www.mybwsbaby.com/feeding-issues/tag/teether monthly 0.5 http://www.mybwsbaby.com/feeding-issues/tag/NICU monthly 0.5 http://www.mybwsbaby.com/feeding-issues/tag/bottle monthly 0.5 http://www.mybwsbaby.com/feeding-issues/tag/feeding+issues monthly 0.5 http://www.mybwsbaby.com/feeding-issues/tag/Tommy+Tippee monthly 0.5 http://www.mybwsbaby.com/feeding-issues/tag/feeding monthly 0.5 http://www.mybwsbaby.com/feeding-issues/tag/hypoglycemia monthly 0.5 http://www.mybwsbaby.com/feeding-issues/tag/macroglossia monthly 0.5 http://www.mybwsbaby.com/feeding-issues/tag/hospital monthly 0.5 http://www.mybwsbaby.com/feeding-issues/tag/solid monthly 0.5 http://www.mybwsbaby.com/feeding-issues/tag/months monthly 0.5 http://www.mybwsbaby.com/feeding-issues/tag/chromosome monthly 0.5 http://www.mybwsbaby.com/feeding-issues/tag/newborn monthly 0.5 http://www.mybwsbaby.com/feeding-issues/tag/food monthly 0.5 http://www.mybwsbaby.com/feeding-issues/tag/Beckwith+Wiedemann+Syndrome monthly 0.5 http://www.mybwsbaby.com/feeding-issues/tag/tube+feeding monthly 0.5 http://www.mybwsbaby.com/feeding-issues/tag/baby monthly 0.5 http://www.mybwsbaby.com/feeding-issues/tag/breastfeeding monthly 0.5 http://www.mybwsbaby.com/feeding-issues/tag/bws monthly 0.5 http://www.mybwsbaby.com/nutrition daily 0.75 2014-10-23 https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1405693926160-LZF7ESCDB0W0M71ECZ3K/20263_fruit-and-veg.gif Nutrition http://www.mybwsbaby.com/nutrition/2014/10/23/baby-chicken-meatballs monthly 0.5 2014-10-23 https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1414050372847-JGC27NBW7ORXIQUDJNT9/DSCF7408.JPG Nutrition - Baby Chicken Meatballs http://www.mybwsbaby.com/nutrition/2014/10/23/kale-berry-smoothie monthly 0.5 2014-10-23 https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1414046600331-J610TH07B2POHKOJJ41Z/mybwsbaby.com+nutrition+and+recipes Nutrition - Kale Berry Smoothie https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1414046544710-I1TGVNS1Q5LZJFVFL012/mybwsbaby.com+nutrition+and+recipes Nutrition - Kale Berry Smoothie https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1414046785385-WSSUZKY05RB3CWSAHM5H/mybwsbaby.com+toddler+%26+kid+nutrition+and+recipes Nutrition - Kale Berry Smoothie http://www.mybwsbaby.com/nutrition/2014/10/1/zucchini-mini-muffins monthly 0.5 2014-10-23 https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1412179741563-98JT0MRAORIN84RK4UDD/mini+muffin+zucchini+bread Nutrition - Zucchini-Carrot Mini Muffins http://www.mybwsbaby.com/nutrition/2014/9/9/recipe-pasta-salad-with-vegetables monthly 0.5 2014-10-20 http://www.mybwsbaby.com/nutrition/2014/9/9/v5pdvzf2o0sngen4zrtcngvnfzbazy monthly 0.5 2014-09-10 http://www.mybwsbaby.com/nutrition/2014/10/23/mamas-best-lactation-cookies monthly 0.5 2014-10-23 http://www.mybwsbaby.com/bws-baby-products daily 0.75 2014-10-20 https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1406761101762-OYUNZP6HOGOYWLMQFEH7/photo+%2812%29.JPG Best BWS products http://www.mybwsbaby.com/bws-baby-products/2014/10/20/tommy-tippee-bottles monthly 0.5 2014-10-20 https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1413779624145-5Y7HKDVR0WRPPKNKH1TR/www.mybwsbaby.com Best BWS products - Tommy Tippee Bottles Tommy Tippe bottle https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1413779649125-OCRZCIZDGXTWBTR9D773/www.mybwsbaby.com Best BWS products - Tommy Tippee Bottles Medela bottle http://www.mybwsbaby.com/bws-baby-products/2014/10/19/sassy-teether monthly 0.5 2014-10-20 http://www.mybwsbaby.com/bws-baby-products/2014/7/30/the-best-car-seat monthly 0.5 2014-10-20 https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1406761152835-D4DQNKZ2347QCUDZT7RD/Diono+Radian+car+seat+vs.+Maxi+Cosi+on+mybwsbaby.com.JPG Best BWS products - The BEST car seat The size difference between the Diono Radian and Maxi Cosi https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1406760677065-BVE0RXNY5XNJ8T5GJ9YZ/mybwsbaby.com.JPG Best BWS products - The BEST car seat Graco Infant Carrier on mybwsbaby.com https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1406760773162-1M5J1SI95MUBAG3OP2C8/Diono+Radian+on+mybwsbaby.com Best BWS products - The BEST car seat Diono Radian - Rainier model car seat on www.mybwsbaby.com http://www.mybwsbaby.com/bws-baby-products/tag/teething monthly 0.5 http://www.mybwsbaby.com/bws-baby-products/tag/soothe monthly 0.5 http://www.mybwsbaby.com/bws-baby-products/tag/toddler monthly 0.5 http://www.mybwsbaby.com/bws-baby-products/tag/teether monthly 0.5 http://www.mybwsbaby.com/bws-baby-products/tag/ice+cube monthly 0.5 http://www.mybwsbaby.com/bws-baby-products/tag/baby monthly 0.5 http://www.mybwsbaby.com/bws-baby-products/tag/sassy monthly 0.5 http://www.mybwsbaby.com/bws-baby-products/tag/frozen monthly 0.5 http://www.mybwsbaby.com/bws-baby-products/tag/infant monthly 0.5 http://www.mybwsbaby.com/bws-baby-products/tag/organic monthly 0.5 http://www.mybwsbaby.com/bws-baby-products/tag/child monthly 0.5 http://www.mybwsbaby.com/the-first-year daily 0.75 2015-10-24 https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1408480057557-1NTPXEH9EGSUHQ1TDSH5/Jacob_3+month+Gpa+2014ver2009.jpg The First Year http://www.mybwsbaby.com/the-first-year/2015/10/24/what-we-face-every-6-weeks-at-the-oncologist monthly 0.5 2015-10-24 http://www.mybwsbaby.com/the-first-year/2015/3/18/one-year-with-beckwith-wiedemann-syndrome monthly 0.5 2015-03-18 http://www.mybwsbaby.com/the-first-year/2014/8/19/five-silly-monsters monthly 0.5 2014-11-02 http://www.mybwsbaby.com/the-first-year/2014/8/19/rock-paper-scissors monthly 0.5 2014-10-31 http://www.mybwsbaby.com/the-first-year/2014/10/31/home-from-the-nicu monthly 0.5 2015-03-18 https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1414737228233-UQ2Y906FUCGQOA9TUTYR/mybwsbaby.com The First Year - Life after the NICU The last feedings in the NICU https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1414737461118-2ILYFP4VPKLL9XPWOAA8/2014-01-05+15.07.24.jpg The First Year - Life after the NICU Daddy hugs https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1414737266860-9FIA2UPMT899A5MM5CP1/www.mybwsbaby.com The First Year - Life after the NICU We are going home! https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1414737414942-G07UF76H6QZI92N40KCG/2013-12-23+17.03.39.jpg The First Year - Life after the NICU Jacob's lost weight and needs extra feedings. https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1414737497235-AM8OVJ6BBPSL7NQRONC0/www.mybwsbaby.com The First Year - Life after the NICU Mommy is happy she finally gets to hold me in her arms without all the wires. https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1414737644447-KUZ17RGMW276R35DMG6T/DSCF4314.JPG The First Year - Life after the NICU Celebrating Christmas in January https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1414737869667-Q7FQ03JXVI32H0GPZOWS/www.mybwsbaby.com The First Year - Life after the NICU https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1414737806024-5WG8LAL4D7R752RF05M7/www.mybwsbaby.com The First Year - Life after the NICU https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1414738016083-M45ZT1Z38O8VZVDDEVF9/www.mybwsbaby.com The First Year - Life after the NICU https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1414737996196-1DOJH5KS5Z47HKKGZR3V/2014-01-25+13.59.01.jpg The First Year - Life after the NICU https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1414737943764-PCS697KFEO55PV8UGRBU/www.mybwsbaby.com The First Year - Life after the NICU http://www.mybwsbaby.com/the-first-year/2014/10/31/why-im-thankful-for-jacobs-jaundice monthly 0.5 2014-10-31 https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1414732792002-3W4X246ESXEY3TGN1F11/mybwsbaby.com The First Year - Why I'm Thankful for Jacob's Jaundice https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1414732946086-ZFQONAFV19SZU6MPUJDL/mybwsbaby.com The First Year - Why I'm Thankful for Jacob's Jaundice https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1414733598165-LH1DZU6K6179FI6YWJLI/mybwsbaby.com The First Year - Why I'm Thankful for Jacob's Jaundice https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1414732889863-6CW5GMLZ55D8SNG8X1EC/mybwsbaby.com The First Year - Why I'm Thankful for Jacob's Jaundice https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1414733110982-050GSMQCR18D2074639U/photo+5.JPG The First Year - Why I'm Thankful for Jacob's Jaundice http://www.mybwsbaby.com/the-first-year/tag/constipation monthly 0.5 http://www.mybwsbaby.com/the-first-year/tag/new+parents monthly 0.5 http://www.mybwsbaby.com/the-first-year/tag/baby+boy monthly 0.5 http://www.mybwsbaby.com/the-first-year/tag/rock+paper+scissors monthly 0.5 http://www.mybwsbaby.com/the-first-year/tag/Huggies monthly 0.5 http://www.mybwsbaby.com/the-first-year/tag/motherhood monthly 0.5 http://www.mybwsbaby.com/the-first-year/tag/daddy monthly 0.5 http://www.mybwsbaby.com/the-first-year/tag/blow+out+diaper monthly 0.5 http://www.mybwsbaby.com/the-first-year/tag/son monthly 0.5 http://www.mybwsbaby.com/the-first-year/tag/Bowl+movement monthly 0.5 http://www.mybwsbaby.com/the-first-year/tag/Beckwith-Wiedemann+Syndrome monthly 0.5 http://www.mybwsbaby.com/the-first-year/tag/BWS monthly 0.5 http://www.mybwsbaby.com/the-first-year/tag/Diaper monthly 0.5 http://www.mybwsbaby.com/the-first-year/tag/Pampers monthly 0.5 http://www.mybwsbaby.com/the-first-year/tag/parents monthly 0.5 http://www.mybwsbaby.com/bws-buddies daily 0.75 2015-04-06 https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1428131311677-AQJYCK21PMJ2U9YF2HCJ/Butterfly+poem.jpg BWS Buddies http://www.mybwsbaby.com/bws-buddies/2015/4/6/nathan monthly 0.5 2015-04-06 https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1428295478159-XNXXMXU72L69LJ8XMTCL/image-asset.jpeg BWS Buddies - Nathan https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1428295759035-VJ3CL2G7FS9X9VGQHMYB/image-asset.jpeg BWS Buddies - Nathan https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1428295502510-X8PNHQ62BM0NEJI96C2Q/image-asset.jpeg BWS Buddies - Nathan https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1428295788314-B9YAA1PN8WA9CPUX1VFZ/image-asset.jpeg BWS Buddies - Nathan https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1428295821391-L8EVT1JFV5V4QY0JV7RY/image-asset.jpeg BWS Buddies - Nathan https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1428295804324-P6CKRP92BRUQZJQYZE74/image-asset.jpeg BWS Buddies - Nathan https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1428296074320-3D3K73FQIKZFU3XNPIJT/image-asset.jpeg BWS Buddies - Nathan https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1428296116170-ZCROD5I7TS20IFBI2IBI/image-asset.jpeg BWS Buddies - Nathan https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1428296629674-BMOBFSKOGN2BMIRXHD2W/image-asset.jpeg BWS Buddies - Nathan https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1428296647253-2TVP9YI3Y8SMJUGBBA5L/image-asset.jpeg BWS Buddies - Nathan https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1428296313084-CGFQAP45SY2VMHDYDRR1/image-asset.jpeg BWS Buddies - Nathan https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1428296377983-XI4HXUMPL4JK1TIYG006/image-asset.jpeg BWS Buddies - Nathan https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1428296362725-2XXUX5XAN72VGECGIVCD/image-asset.jpeg BWS Buddies - Nathan https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1428296556611-Y379JZ2GRE9KWJ23UOU1/FullSizeRender.jpg BWS Buddies - Nathan http://www.mybwsbaby.com/bws-buddies/2015/4/4/ali monthly 0.5 2015-04-04 https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1428187580879-Z51HL8CH1ONMK95431XZ/image-asset.jpeg BWS Buddies - Ali https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1428187623893-Q72BEVEU2JX49DJRYPJ8/Ali2.jpg BWS Buddies - Ali https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1428187685676-RDNUMWF669JVDOF1BWQZ/image-asset.jpeg BWS Buddies - Ali http://www.mybwsbaby.com/bws-buddies/2015/4/4/jasper monthly 0.5 2015-04-04 https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1428132560967-ETD33ZHVH7AW1B9UADW3/image-asset.jpeg BWS 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https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1586222278190-PWSF8YUXUXZNJ45O9GGL/20200406_115138_HDR.jpg A Day in the Life of BWS - BWS Awareness Day 2020 https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1586222329412-DCIS4BCNA3QJ1PXREIY5/20200406_155647.jpg A Day in the Life of BWS - BWS Awareness Day 2020 http://www.mybwsbaby.com/a-day-in-the-life-of-bws/2018/9/25/4-years-after-tongue-reduction-surgery monthly 0.5 2018-09-26 https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1537931099632-R93W3R8QY3TRJDGYIE06/isaiah-41-10_desktop_large.jpg A Day in the Life of BWS - 4 Years After Tongue Reduction Surgery Image Credit: lekton.info/plus/i/isaiah-41-10/ https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1537931639299-SJUJ01MGX0N5Z3AH0643/Pre-op.JPG A Day in the Life of BWS - 4 Years After Tongue Reduction Surgery 3 Months Old-before TR surgery 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https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1466459614634-5D4822AJ7R7XM1BS3EN6/Jacob%27s+song+cover Home Jacob's Song by Lianna https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402206108194-HMFYQKD8OYSIIIBV11VP/Beckwith-Wiedemann+Syndrome+chart+on+mybwsbaby.com.jpg Home Beckwith-Wiedemann Syndrome https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402206272183-ZMQNVULGSL1WKORD5U8W/BWS+awareness+day+on+mybwsbaby.com.jpg Home BWS Awareness https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402206498787-TIAUZFAOLH6AOYWWQKQW/Beckwith+Wiedemann+Syndrome+NICU+on+mybwsbaby.com.jpg Home NICU Beckwith Wiedemann Syndrome http://www.mybwsbaby.com/tongue-reduction-surgery-information daily 0.75 2018-09-26 https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1407514217441-FKT2G8E2DY47MCMFF569/DSCF5066.JPG Tongue Reduction Information 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https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402243406039-6NUDEB9UK1EPQTXKGIAU/photo+9.JPG Life in the NICU https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402207800781-67SRU2EGH32I8HUTLJLF/cat+pray.jpg Life in the NICU https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402207809590-OQT0X0Z7S8XL883FZRU3/1-Thessalonians-5-17-18+bible.jpeg Life in the NICU https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402209894675-AI0PHS2P9A52BS4HC7U2/New+year%27s+eve+in+the+hospital+at+mybwsbaby.com.jpg Life in the NICU We were so grateful to our friends who brought us meals. https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402209029679-KBN8RZ7MN6FIHS694AUB/my+first+new+year%27s+2014+at+mybwsbaby.com Life in the NICU My First New Year's Eve https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402208784803-EB3QJHOZ9V0C9PZZ7KDE/2013-05-16+18.20.51.jpg Life in the NICU - my bws baby onesie https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402210228368-ER2ZGUFO8K8085W7C1E9/Aunt+Dani Life in the NICU Auntie Dani https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402232448633-H23OE6LOG1CDQBBKVRAA/daddy+feeding Life in the NICU Daddy trying to get me to eat https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402232292919-JRE0GWCKM9QA41MA7VNI/mommy+and+me.JPG Life in the NICU Mommy comforted me and prayed for me everyday. https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402232562707-XK9JABATKRKM3QGCDOQP/Aunt+Robin Life in the NICU Aunt Robin https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402210381927-OMXH2XJSA4EDGPCS7SLI/hospital+snooze Life in the NICU Mommy and Daddy sleeping in my NICU room. https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402232515832-L1MP7GF6ZNNFQHYK8UV8/Uncle+Eddie Life in the NICU Uncle Eddie 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https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402696291138-CR5HF3M3ZMB0TRND8JA4/pre-op+BWS+tongue+surgery Tongue Reduction Surgery Showing off my tongue to the nurses. They nicknamed me Mr. Handsome because I like to smile and flirt! https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402491983729-LA2UDIHPRA9ZLO5E3843/DSCF5141.JPG Tongue Reduction Surgery https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402492071862-64BIFYP9JBYC12FP3HUE/DSCF5133.JPG Tongue Reduction Surgery https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402492211896-QAM0LUC1AQGA6UA7YMFT/DSCF5139.JPG Tongue Reduction Surgery https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402492252978-OO4MQDU9EZ9N8ZOKCSYX/DSCF5134.JPG Tongue Reduction Surgery https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402492307874-9NBVR1QTXDP9LEX56UZF/DSCF5131.JPG Tongue Reduction Surgery https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402698308258-21DI7OVR5J3IOU3FGX3E/DSCF5163.JPG Tongue Reduction Surgery 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Surgery https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402763917058-RK4ZGQSKQ052Y57YE2LG/DSCF5168.JPG Tongue Reduction Surgery https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1410412526638-A8000RDMHWFN2KLIGYIX/DSCF5191.JPG Tongue Reduction Surgery https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402765958611-Q6XJ1QHB84X67UNYI643/DSCF5186.JPG Tongue Reduction Surgery https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402767256847-7PS8BEZR8LWI6L0K61AG/DSCF5190.JPG Tongue Reduction Surgery https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402767496731-QFEAT8ZO3LTJ0KQP8A24/DSCF5184.JPG Tongue Reduction Surgery https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402767638491-BDEXN85GWPG37QJRCSGP/DSCF5166.JPG Tongue Reduction Surgery https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402767688988-XH1QWIKT31TSJLIYVWGM/photo+2.JPG Tongue Reduction Surgery https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402768884095-W3WCQCXBT1QKKUJ4GBM1/DSCF5206.JPG Tongue Reduction Surgery https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402769127050-I37B6K1X7QRPJE4PMCTZ/DSCF5203.JPG Tongue Reduction Surgery https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402769246784-UVQ3JSYDSUTOULGUS7GK/DSCF5205.JPG Tongue Reduction Surgery https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402772870633-TOTEH13OWMNY6NQKLR4Z/DSCF5213.JPG Tongue Reduction Surgery https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402773103956-SXTI0FXA8NX93TCVRKBR/DSCF5212.JPG Tongue Reduction Surgery https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402773277407-ASOBWONJMA6HH1TTFL7W/DSCF5217.JPG Tongue Reduction Surgery https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1405143109605-4O8ZPNVTN9QI6QYWEM3A/DSCF5226.JPG 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Reduction Surgery https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1405142895295-RMHF1SRUDAOAOBSJNFF1/Week+4c.JPG Tongue Reduction Surgery https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1405147053103-AZ6BA6CZ6TCND7BD3MQ8/DSCF5321.JPG Tongue Reduction Surgery https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1408506410775-E4OOSARXIWX6QGDMQ3Q6/Beckwith-Wiedemann+Tongue+Surgery Tongue Reduction Surgery Jacob is almost stitch-free! https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1408506844870-8V8DAV6L0IXLUENB0VVK/DSCF5896.JPG Tongue Reduction Surgery https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1408507037733-TZHUDTBBXHVV4DV5ZO2W/DSCF5865.JPG Tongue Reduction Surgery https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1408507037116-KB3VVN635W7KJ859SD43/DSCF5866.JPG Tongue Reduction Surgery 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https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1405145615646-QI5GXVERA1TUBMEHL8B8/DSCF4972.JPG Tongue Reduction Surgery https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1405145632807-39AHTL9DYZS2V2XNCSTJ/020.JPG Tongue Reduction Surgery https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1405145645967-SZWILW3O7J67PC005YQR/DSCF5082.JPG Tongue Reduction Surgery https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1405145659280-MT59KBUD9NB68YMAC8KC/DSCF5106.JPG Tongue Reduction Surgery https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1405145710692-I7W3DAT8TPOI3UUVSFOK/2014-04-20+08.30.13.jpg Tongue Reduction Surgery http://www.mybwsbaby.com/bws-resources daily 0.75 2014-09-23 https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402230957883-2N3KSKBB61S0O2S4TU3Z/Sunflower+pic.jpg BWS Resources https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1405548491875-2AJKJ4XL8A4KUVPSTJ0W/image-asset.jpeg BWS Resources   In the search field on Facebook type in "Beckwith Wiedemann Syndrome. It is a closed group so you will need to ask to join. You can also click on the link below to go directly to their page https://www.facebook.com/groups/78357624606/   https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1409844585781-L40Z8FA3EY2H3F0YEHOB/BWS+Beckwith-Wiedemann+Awareness+Day+wear+YELLOW BWS Resources BWS Awareness Day is April 6! Help show support by wearing yellow and sharing the website mybwsbaby.com with friends and family. http://www.mybwsbaby.com/jacobs-story daily 0.75 2015-10-24 https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402233745225-VUYRV2TX3RUSD451ED2H/IMG_1226.JPG Jacob's Birth Story https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402233693442-6QEWQTT1BD5NGFAJEWU7/Jacob+in+the+NICU+with+BWS+Beckwith+Wiedemann+Syndrome+mybwsbaby.com Jacob's Birth Story Jacob diagnosed with BWS in the NICU www.mybwsbaby.com https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402237549429-8PNOOIK3ZCK3I2A0FD67/mommy+and+me Jacob's Birth Story https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402234176905-J9CT5A58Q6AODJSWNLDA/Baby+Jacob+birth.JPG Jacob's Birth Story https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1428382590146-Y0MM1JCUY6WN05LQ2UJ1/image-asset.jpeg Jacob's Birth Story https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402234537400-Z7FWHNY2QH44QA5OKO0R/Jacob+NICU.JPG Jacob's Birth Story https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402239522669-9WM1UFTKOWEQZY5J1FAP/NICU+feeding+BWS+mybwsbaby.com.jpg Jacob's Birth Story https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402239936519-HZAQTVSTLS97HV892HTQ/mommy+holding+me+mybwsbaby.com Jacob's Birth Story Mommy singing to me "Away in the Manger" on Christmas Eve https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1405946891619-R32MRV8HCQ0WXXPD7YIO/daddy+feeding+mybwsbaby.com.jpg Jacob's Birth Story Daddy trying desperately to get me to eat. https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402240063251-OY41A2LYE6MIY9WTPHNG/Jacob+NGtube+mybwsbaby.com.JPG Jacob's Birth Story https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1405947704543-A41O8BS314M7OPFNWXR3/mommy+holding+me+wire+free+mybwsbaby.com Jacob's Birth Story After a few weeks, the nurses let me hold him for a few minutes without all the wires and cords. https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402240386173-GM4P4UD4JREIWBY2HML0/hospital+snooze+mybwsbaby.com Jacob's Birth Story https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402239570949-6IJZ3GLW8SYXGP8AMOCX/my+first+new+years Jacob's Birth Story My first New Year's Eve https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1405882924691-ZB12SIJ0E42NPAEXP8JZ/2013-12-28+12.00.43.jpg Jacob's Birth Story https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1405883045280-Z347K5BM9O8AIBIL9G7T/2013-12-18+12.22.16.jpg Jacob's Birth Story https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1405883052711-XZS5RDJ8IXSJN8BKST1X/2013-12-19+15.59.04.jpg Jacob's Birth Story https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1405883071482-P8MZ9ZE9D4U7KB574MI6/2014-01-01+14.54.31.jpg Jacob's Birth Story https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1405883079436-PDJP6DMJOCP8CR7Y2SRZ/2013-12-21+11.58.13.jpg Jacob's Birth Story https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1405883105924-Q1ZMMG0NXUX92H3D2I3Q/IMG_2111-1+%282%29.jpg Jacob's Birth Story https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1405883148883-L7HNNQVYUAE05JYFOSGP/2014-01-04+12.13.34.jpg Jacob's Birth Story https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1405883190387-TOYHR1ZTWZHASJLIYGDV/DSCF4292.JPG Jacob's Birth Story https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1405883259223-CKY7W6X23ONOSWV4F1OS/IMG_1846.JPG Jacob's Birth Story https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1405877592512-04UFRO5CGZ09WBAFJUVP/on+my+way+home+from+NICU Jacob's Birth Story Jacob finally gets to leave the NICU in January! https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1405877781877-F7CC8ZKBOA0WK4V5DRQW/daddy+rocking Jacob's Birth Story Daddy loves to cuddle in the rocking chair. https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1405877940289-7EWISKC7M8XAC9W140RI/finally+home.jpg Jacob's Birth Story Mommy is so happy to finally get to hold me at home with no more wires or machines. https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1405881657515-47GB2EW8LZMVY40KMHSB/Christmas+in+January+mybwsbaby.com Jacob's Birth Story https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1405881814399-KV8668GF6C0Y9N1RV87W/Celebrating+Christmas+Aunt+Dani.JPG Jacob's Birth Story https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1405881769118-3UM3165GJ752ODX1IJ00/Christmas+in+July.JPG Jacob's Birth Story http://www.mybwsbaby.com/donate daily 0.75 2025-08-15 https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1413772362611-HB0TQIYEQRR3RTVGJAHS/Butterfly+poem.jpg Donate https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1413772510909-OJJ5APWJDHTD2O8KQOH6/NICU Donate https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1428130346022-BTJVX2YAHGNSECTF7EIM/howbigbws.jpg Donate https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1414945901126-MQULPDY0W9WIG0D0QHDC/mybwsbaby.com Donate I Will for Cancer fundraiser https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1414945993455-ZSFK8SSCS5FJ94ODU1IE/www.mybwsbaby.com Donate I Will for Cancer fundraiser http://www.mybwsbaby.com/contact daily 0.75 2014-01-06 https://images.squarespace-cdn.com/content/v1/52a74d9ae4b0253945d2aee9/1390510556456-TV8RZ8LOBB3L6TBXFWZD/tumblr_mkrr2pZQ851rkz363o2_1280.jpg Contact http://www.mybwsbaby.com/jacob-the-first-year daily 0.75 2014-07-20 https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402242736283-ZGO6JUY788KO71HICYCA/Jacob_3+month+Gpa+2014ver2009.jpg Jacob-The First Year https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402242984346-9NTK8MIJQ40ZVRQH8ZL3/Jacob_3+month+Gpa+2014ver2009.jpg Jacob-The First Year 1 month old https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402241466917-UUSR1MUMCMYBFHCYNGOM/2014-01-03+14.23.32.jpg Jacob-The First Year Jacob finally gets to leave the NICU! https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402241370031-75FQCHI32K2IY1O2FE0K/image-asset.jpeg Jacob-The First Year Daddy loves to cuddle. https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402241172942-YMQCZBG1035LVX5CLAIN/2014-01-05+18.12.03.jpg Jacob-The First Year Mommy is so happy to finally get to hold me at home with no more cords or machines. https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402242338829-7TF0C23E5VKXZGPSROW7/image-asset.jpeg Jacob-The First Year Celebrating Christmas in January https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402240931944-61S8M4G1ZGYFXEZJGBCP/2013-12-28+12.00.34.jpg Jacob-The First Year https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402240937804-XIDPZTACNL85WU86RKB8/2013-12-18+12.22.16.jpg Jacob-The First Year https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402240962934-YIN5MMS0PT9QV5VH8GWS/2014-01-01+14.54.31.jpg Jacob-The First Year https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402240985461-EYNJ36PATOUH1YWSCAOO/DSCF4078.JPG Jacob-The First Year https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402241003139-Q5SVFJOPYWCDPJX5DZG9/Eddie+and+Jacob_hospital.jpg Jacob-The First Year https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402241018927-FPV5WLIWEAVD991A6FFA/2013-12-21+11.58.13.jpg Jacob-The First Year https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402241037898-JR2TTWG3WGNRRS94PI33/IMG_2111-1+%282%29.jpg Jacob-The First Year https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402241073389-48B6ZYI6MWQRWR7TCPOS/2014-01-04+12.13.34.jpg Jacob-The First Year https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402241726402-AW2H73D1K11VHWKVB222/2014-02-27+08.39.53.jpg Jacob-The First Year https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402241763611-CZPM57IPOWOUFAFVVD6H/DSCF4480.JPG Jacob-The First Year https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402241775593-SDB5BZ3OBO9QI6Z9IYJE/DSCF4478.JPG Jacob-The First Year https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402241823626-9Q1ZGR47D7HWE8AIQPY3/DSCF4555.JPG Jacob-The First Year https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402242106696-QRENLHXK7QYK0RVND93I/DSCF4292.JPG Jacob-The First Year https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402242174602-3JLGJ1OKZ9N8SKVORRZF/IMG_2006.JPG Jacob-The First Year https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402242206818-R9II00T2GX5R81L114I9/IMG_2031.JPG Jacob-The First Year https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402242218253-NQKAR2QOE83KSI5Z1BFV/IMG_2012.JPG Jacob-The First Year https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402242245685-MQKSKW0ZHCB35SN37QXZ/IMG_1807.JPG Jacob-The First Year https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402242782895-U9HJAD9YT77HT5P89R2A/IMG_1980.JPG Jacob-The First Year https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1402242824217-9JKLGJ5KF7J0QGIRUD82/IMG_1847.JPG Jacob-The First Year http://www.mybwsbaby.com/bws-awareness-t-shirts daily 0.75 2025-08-15 https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1520534546076-5ZFOTFUJP68TXNEV391V/20180307_120638_HDR.jpg BWS Awareness Shop https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1520532400786-R6KZSJB8TGM2ZTVSCQSA/20180307_125237.jpg BWS Awareness Shop https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1520532483437-OYJCDNZA882UCW8A7NJZ/20180307_120638_HDR.jpg BWS Awareness Shop https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1520532270760-BHC4KWY5KOFJZPPGJTTU/wish+necklace2.jpg BWS Awareness Shop https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1520532051398-1ECK8725PTYBM7P206JX/20180307_125156_HDR.jpg BWS Awareness Shop https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1428129874419-NRIJ2GUQQSJBCDD99WAZ/2.JPG BWS Awareness Shop BWS Awareness charm Bracelet https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1409841927253-CP12CJU94KRKQ53QTPA6/BWS+awareness+shirt+I%27m+Big+and+i+know+it BWS Awareness Shop http://www.mybwsbaby.com/bws-bracelets daily 0.75 2015-10-14 https://images.squarespace-cdn.com/content/v1/5391e1bae4b07b6926543f3e/1405610605826-HM2EETB5CPHEO12LIZ7V/BWS+awareness+bracelets2.jpg Order BWS bracelets here.