Tips for Feeding Baby Solid Foods
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Feeding Issues
Our journey with Beckwith-Wiedemann Syndrome and the struggles with feeding issues related to macroglossia and tongue reduction surgery. I hope you find strength and encouragement from reading our story.
My BWS Baby
Our world forever changed when our son Jacob was born. He came 3 weeks early and everything seemed to be fine until a few hours after his birth when the doctors came into our hospital room and began discussing signs that our son had a chromosome disorder. It was the most difficult situation I have ever had to face.
We felt scared, alone, and helpless. I spent countless hours trying to find resources, support, and learn all I can about his diagnosis with Beckwith-Wiedemann Syndrome.
It is my intent to create a website where parents of children with BWS can find all the information you are looking for because the last thing you need as a sleep-deprived parent with a newborn is to be spending countless hours on google!
I pray that you may find comfort in knowing you are not alone in your journey with BWS, and that you are able to discover that life is beautiful beyond the diagnosis.
My BWS Baby
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